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Oliver’s PFV Journey Continues

Though we planned to end the procedures, there was one more surgery the following March, at 8 months old, to swap the oil out for a gas bubble as there was a small amount of leakage occurring.  We had thought we were done – the road is full of surprises! But he did well, though recovery was a bit ...

PFV Provider of the Month: Susan Frost Shore

We have another amazing Ocularist for you this month! Enjoy!   What drew you to this profession? Having  a registered nurse for a mother,  I grew up with a heightened concern for the wellbeing of other people.  As an art school graduate, I wanted to use my artistic skills to help people. ...

Advocate with Littlest Warrior Apparel & Giveaway!

DISCLOSURE: This post was sponsored by Littlest Warrior and product was provided in exchange for our honest opinion. As always, we only recommend and support products, shops, and people who align with our mission and enrich our community. I think that as parents of a child with a different diagnoses, ...

Advocate Like A Mother: Raina’s Story

Definition of Advocate One who pleads the cause of another. One who defends or maintains a cause or proposal One who defends or maintains a cause or proposal One who supports or promotes the interests of a cause or group. I tend ...

Discovering Oliver’s PFV

In the hospital not long after Oliver's birth, Mom noticed something different (a sort of reflectiveness) but no one said anything; the second night before getting to go home, while nursing, she saw clearly into his pupil – which was white, not black. Cue the immediate freak-out (though it was ...

PFV Provider of the Month: Dr Jeffrey Colburn

  It is time for our PFV Provider of the Month! This month, we are bringing you our first Ophthalmologist profile. Thank you Dr Colburn for sharing with our community!   What drew you to this profession?   I originally went to medical school planning to be a pediatrician, ...

Passive Restraint

Passive: accepting or allowing what happens or what others do, without active response or resistance Restraint: a measure or condition that keeps someone or something under control This has been top of mind for me recently. I have to put Eli’s scleral shell in each morning and take ...