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Conquering Our Challenges: A Scarlett Update

First, how did Scarlett get to be 18 months old?!?! How??? Anyway, we have had a lot of changes since our last update NINE months ago! Time flies when you are having fun raising babies. We have had a lot of little changes and challenges along the way! Her Prosthetic We are still on her first prosthetic eye. She had to have ...

Hitting Milestones: An Update on Katia

Following our last August post, life with Katia has been a whirlwind! At our latest appointment her prescription was changed from +19 to +18 and I remain hopeful. She has also started walking! OH MY! She used to crash into everything and walk on her tip toes, so we ordered her first pair of glasses for protection. We have ...

What is Persistent Fetal Vasculature?

I remember when we first found out Olivia was diagnosed with Persistent Fetal Vasculature. The first thing we did when we got home was Google “What is Persistent Fetal Vasculature” – of course, right? Our search results were full of big scientific words we didn’t understand, scary outcomes and very little language we ...

How Do You Win the Battle with Insurance?

Honestly, this all depends on your definition of winning. If you saw my last post, you know the struggles we have had. I am happy to report that we won our battle. After many, many phone calls and appeals... we finally got better coverage for Scarlett's prosthetic! I consider that a victory but if we ever change insurance... ...

PFV Provider of the Month: Susan Frost Shore

We have another amazing Ocularist for you this month! Enjoy!   What drew you to this profession? Having  a registered nurse for a mother,  I grew up with a heightened concern for the wellbeing of other people.  As an art school graduate, I wanted to use my artistic skills to help people.  I thought that making ...

Advocate with Littlest Warrior Apparel & Giveaway!

DISCLOSURE: This post was sponsored by Littlest Warrior and product was provided in exchange for our honest opinion. As always, we only recommend and support products, shops, and people who align with our mission and enrich our community. I think that as parents of a child with a different diagnoses, we all end up advocating ...

Advocate Like A Mother: Raina’s Story

Definition of Advocate One who pleads the cause of another. One who defends or maintains a cause or proposal One who defends or maintains a cause or proposal One who supports or promotes the interests of a cause or group. I tend to share a lot of ...